#WeAreNotWaiting: how open source is changing healthcare
– Dana Lewis
- Getting diagnosed with a chronic disease is like being struck by lighting.
- Insulin takes a while to kick in
- Manual diabetes
- Have to check level over and over again
- Have to judge trend and decide more insulin, food, exercise, etc
- Constantly
- Device
- Windows-only interface software to access
- Alarm not great, various other limitations
- Idea
- Pull data off the device, create smarter app
- Hard to do
- First version
- Device -> WinPC -> dropbox -> app -> pushover -> phone
- 2nd Version
- Press button to indicate what she is doing (eating, sleeping) when get alert
- 3rd version
- Hook into Insulin pump to do it automatically
- Replace the human do they same thing over-and-over again in the loop.
- all portable
- Person doesn’t have to wake up to adjust, petter sleep
- OpenAPS
- Open Source
- Created a list of ways it could fail (battery fails, wires come out)
- Focusing on safety
- Limiting dosing ability in hardware and software
- Failing back safely to standard device operation
- Approx 1000 users
- 9 million+ hours of DIY closed loop experience
- Anonymized dataset available
- Sample child user
- Before: 4.5 manual interventions per day by parents
- After: 0.7 per day
- School Child ( 5 vs 6th Grade )
- 420 visits to school nurse ( 2.3 /day ) – 66 visits for events
- 5 visits with OpenAPS – 3 visits (Gym related)
- Intel Edison Platform
- Smaller than Raspberry Pi
- But discontinued (looking for old ones to replace)
- Going back to Pi, now smaller
- Has built in display with “Explorer Hat”
- Outsiders are building stuff because they can and the traditional companies are not meeting the need. Innovate with small solution and build it up
- Ask what little things you can do for people with similar problems. This started with just “Make a louder alarm”.
